Saturday, September 28, 2013

Who is this kid??? Poor Ash and his puffy face. We learned yesterday he has childhood nephrotic syndrome. His little legs and belly are a little swollen right now bc of fluid backup. Sounds scary but his long term outlook is good. He will likely outgrow it by adolescence. For now with this and future lapses we just have to be a bit careful with blood pressure and infections. Thankfully he will be able to participate in all the normal fun silly things 5 year olds love to do. Of course with ash that means animal crafts, animal books, and going to the zoo!

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